|Rae and Anna (PT)|
|Rae and Karen (OT)|
Secondly, we had our very first IEP (Individualized Education Plan) meeting last week. I felt so uncertain about what we were walking into and have heard more horror stories than encouraging ones. Part of me was ready to go battle and the other part of me wanted to just sit back and observe....I could do neither. We have to participate in creating this plan...a legal contract actually. We worked with representative of our local school board to develop goals and determine which school offers the best program for Rae. I toured two schools, our "home" school (about 6 minutes from our house) and another one about 30 minutes away, before the meeting. After discussing the options over with dear dad, we decided we wanted to make the 30 minute commute, which required a special assignment and was dependent on the school accepting Rae. They did within two days!!!
Our first experience with an IEP meeting was smooth and effortless. I'm sure we will have to do some tweaking here and there over the school year, but right now we are pretty satisfied with the outcome. Rae will still receive all of her therapies, has reasonable goals, and will be enrolled at our first pick school. I'm already shopping online for manatee stuff (the school mascot) and found the cutest pair of socks!!!
|These socks can be purchased at Manatee Gifts Galore.|
Yes, there are many pros and cons to a G-tube and we have to weigh them all against each other, but I'm not going to get into all of that just yet. This decision requires more tests (another modified barium swallow and an upper GI...completed this week) and more consultations with her doctors. We aren't jumping into the surgical room at this point. I'm still wrapping my mind around the words and what that means for all of us. In the end, whatever is in Rae's best interest will be the direction we go.
These last three years have just flown by and I know the years ahead will move just as quickly. We didn't have a big party...heck, we didn't even have a small party. It was just immediate family this year and we were able to include my brother and his family via Skype. Being able to share her birthday with them made it even more special.