It's my Guilt Quilt.
My quilt is made up of everything I feel insecure about and all the things I feel I don't do well enough. Every square is another piece of my guilty conscience (justifiable or not).
Top 24 Guilt Quilt Squares
- I don't spend enough time doing therapy with Rae, I don't make her work as much as she should, and I cave in to her will on a regular basis.
- I'm not being as proactive as I should in finding help/assistance for Rae.
- I don't keep my home clean enough. (UGH...chores!!!)
- I don't keep my yard trimmed/cut. (Double UGH...more chores!!!)
- I don't bake/cook as often as I think I should.
- I don't get the laundry done. (if I do manage to wash everything it will lay on my dining room table for a few days before I put it all away).
- My husband and I don't spend enough time together without all the distractions of life (Rae, emotions, "stuff") getting in the way. (this is a doozie and often leaves me feeling lonely)
- I can't really return "favors" or do things for the people I care for & love.
- I don't call my family/friends often enough to see how they are doing.
- I don't do anything with my photography website or photography in general.
- I don't make all of Rae's food. (seriously I'm doing the best I can)
- We don't get enough sleep...I constantly toss and turn (the sand man needs to give me a double dose!) and my husband snores so I'm always shaking him to make it stop.
- I'm angry, sad, resentful, mean, depressed, exhausted, selfish, crazed, mad, nit-picky, lazy, undisciplined...okay this list can go on forever.
- I'm not as neighborly as I want to be or think I should be.
- I don't exercise and I don't eat well. (Oooo....Taco Bell Thursday!)
- I did this to my daughter because it is likely a genetic thing and that comes from us.
- She doesn't walk, crawl, or roll over because I don't work with her enough.
- She doesn't talk/sign/communicate because I don't work with her enough.
- I should have caught the seizures sooner. (Why oh WHY didn't I see it sooner???)
- I should have noticed there was a problem sooner than five months. (Yes, I was a new mom, but I should have known!)
- I get frustrated with Rae. (every parents struggle)
- I have to make decisions about who gets medical treatment based on finances...I really need to have my knee x-rayed, but I can wait because we have to have another MRI that has to be done for Rae and it's more important. (yes, I know that I need to take care of myself so I can take care of her and I promise I'll get to it...eventually)
- I really shouldn't yell so much when I'm upset...at least I don't hit.
- I never finish ANYTHING! I have so many little projects just sitting in piles that I could open my own craft store. (okay maybe I'm exaggerating a little, but I really need to finish something)
Top 10 Positive Quilt Squares
- I love, Love, LOVE my daughter!!! She is my joy, my passion, and my purpose.
- I try to show my husband that he is as important as Rae and that I love him too (I don't always succeed, but I try). It's easy to lose sight of the people around you when you're struggling with something or to take the frustration out on them.
- I keep all of Rae's medical "stuff" in a fairly well organized binder (it's the only organized thing in my house). This one little show of organization makes bills, receipts (very important), appointments, insurance info, doctor contact info, and programs easier to find when I need them and offers me some peace.
- I research what I believe may help Rae, her doctors, or us in helping her make further progress or figure out what is causing the problem. I have learned to limit this research by declaring computer free/doctor free days. This allows me to focus on the ever growing list of things I haven't gotten around to doing. I feel a greater sense of accomplishment knowing I finished something...even if it was simply dusting the living room, mowing the grass, or just playing with Rae.
- I am learning to ask for help (that is never easy for the person who is used to being the helper). When it comes to something I need for Rae I am going to pull every string and ask for any assistance we may qualify for (which isn't much right now). I will have no shame when it concerns our daughter's needs.
- I am making time for myself, for "us," for Rae, and for our friends/family that isn't centered around our current distressing situation (if you haven't started doing this I highly recommend it). Rae spends at least one night a week with her Mimi and G-Boss. This gives us a much needed break and allows us to enjoy a night to ourselves. Thank God for Grandparents!
- Even though I think I'm not being proactive enough...I am being proactive. I don't have to sit at the computer all day or tie myself to the phone in order to get anywhere. I am trying to keep it simple and focus on one task at a time.
- I allow myself to feel the emotions that present themselves. I don't wallow in them. I acknowledge they are there and then I work to move forward. Yes, some will circle back around, but I'll deal with them when they get here.
- Some days are better then others and I'm learning to seek out the good things, not the bad.
- Even though it is frustrating to no end, I have NO control over this situation and I realize that I have NO control. We will have to roll with the punches and have faith. (thanks for all the encouragement Maria, you are one of many prayer warriors that keeps me grounded)
"Therefore I take pleasure in infirmities, in reproaches, in needs, in persecutions, in distresses, for Christ's sake. For when I am weak, then I am strong." 2 Cor. 12:10